Please read Dr. Setoguchi’s article in the Journal of the American Medical Informatics Association titled, “Synergies between centralized and federated approaches to data quality: a report from the national COVID cohort collaborative.“
COVID-19 has precipitated a worldwide public health emergency requiring responsive action from all branches of medical science, including informatics. The National COVID Cohort Collaborative (N3C), sponsored by the NIH National Center for Advancing Translational Sciences (NCATS), is a data-driven response to this challenge. Through leading-edge technology, N3C uses harmonized electronic health record (EHR) data to support pioneering collaborative research that spans the full COVID disease cycle—from risk factors, to disease progression, to treatment decisions. The result of this collaboration is a research environment that addresses technical, legal, and policy barriers to rapid discovery and dissemination of actionable clinical findings to optimize the acute and long-term health outcomes of diverse populations nationwide. To read the full article.
Synergies between centralized and federated approaches to data quality: a report from the nationalCOVID cohort collaborative. Pfaff ER, Girvin AT, Gabriel DL, Kostka K, Morris M, Palchuk MB, Lehmann HP, Amor B, Bissell M, Bradwell KR, Gold S, Hong SS, Loomba J, Manna A, McMurry JA, Niehaus E, Qureshi N, Walden A, Zhang XT, Zhu RL, Moffitt RA, Haendel MA, Chute CG; N3C Consortium, Adams WG, Al-Shukri S, Anzalone A, Baghal A, Bennett TD, Bernstam EV, Bernstam EV, Bissell MM, Bush B, Campion TR, Castro V, Chang J, Chaudhari DD, Chen W, Chu S, Cimino JJ, Crandall KA, Crooks M, Davies SJD, DiPalazzo J, Dorr D, Eckrich D, Eltinge SE, Fort DG, Golovko G, Gupta S, Haendel MA, Hajagos JG, Hanauer DA, Harnett BM, Horswell R, Huang N, Johnson SG, Kahn M, Khanipov K, Kieler C, Luzuriaga KR, Maidlow S, Martinez A, Mathew J, McClay JC, McMahan G, Melancon B, Meystre S, Miele L, Morizono H, Pablo R, Patel L, Phuong J, Popham DJ, Pulgarin C, Santos C, Sarkar IN, Sazo N, Setoguchi S, Soby S, Surampalli S, Suver C, Vangala UMR, Visweswaran S, Oehsen JV, Walters KM, Wiley L, Williams DA, Zai A. J Am Med Inform Assoc. 2022 Mar 15;29(4):609-618. PMID: 34590684 PMCID: PMC8500110 DOI: 1093/jamia/ocab217